You can find our Annual Report, strategy papers and research papers here.
If you have any problems downloading files or can't find what you're looking for, please call 0131 444 1900.
Annual Report and Accounts of Children’s Hospice Association Scotland for the year ended 31 March 2018.
Download the Annual Report (PDF, 5.25MB)
With the help of the Scottish Government, we commissioned a ground-breaking piece of research that established, for the first time, the full scale of the number of children in Scotland with life-shortening conditions. It is from this work that we know three children die each week but the more compelling statistic for us was that we are reaching only one of these families. We need to do much more to reach out to every family that needs our help and this theme of reaching every family is at the very core of our new three year strategic plan.
Download the CHAS Strategic Plan (PDF, 2.95MB)
New research commissioned by CHAS shows up to-date information about the numbers and characteristics of babies, children and young people aged 0-21 who have life-shortening conditions. Across Scotland, 15,949 babies, children and young people have life-shortening conditions. Of these, 5,671 had contact with a hospital team in the preceding year.
These figures confirm what CHAS already knows - there are many and an increasing number of children in Scotland who are likely to die young. We know the benefits that palliative care brings to babies, children and young people and their wider families. CHAS's vision is to ensure that support is available to all who need it.
Many of these children, and their families and siblings, are living with complex care and support needs. The services available to support them are delivered nationally and locally, through integration authorities, territorial health boards, local authorities and the voluntary sector.
Of all the deaths from life-shortening conditions each year, nearly 40% died before reaching their first birthday. This reinforces the importance of children's palliative care in neonatal units. Staff in those units, and in community nursing teams, must be confident and skilled in supporting new parents and very young babies who will likely live for only a short period of time.
There is a very strong correlation between poverty and being a child with a life-shortening condition. This is particularly the case for babies, children and young people who have had recent contact with a hospital team - 26.5% of these lived in the most deprived population areas; the same figure for the least deprived areas is 15.9%.
Babies, children and young people from South Asian and black families are more likely to have a life-shortening condition than those from white backgrounds. This is an important reminder, if it were needed, that organisations, including CHAS, must ensure that services are accessible and culturally competent for the diverse populations they serve.
You can download the ChiSP 2 report here. (PDF, 7.9MB).
The HTML are large files and best viewed using the Google Chrome browser.
CHAS has been working with colleagues at NHS Lothian since 2014 to enhance the neonatal palliative care and the support that families receive at the Simpson's Centre for Reproductive Health in Edinburgh. A new report on this collaborative approach demonstrates that families and staff truly value the very specialised support that CHAS can offer.
You can download the report here. (PDF, 2.65MB)
CHAS recognises that the scale of need for our services across Scotland is immense. Our ambition is that every family in Scotland who is living with the heart breaking knowledge that their child is dying, will be supported, cared for and helped to make the most of that precious time.
From the 2015 ChiSP Study we know that children’s palliative care continues to grow as a speciality in Scotland with sustained increases in the prevalence and complexity of life-shortening conditions. Education is therefore an integral component of children’s palliative care to ensure the workforce is capable, confident and equipped with the required knowledge and skills to deliver high quality and effective care that makes a real difference to children and families during the toughest of times.
The scoping exercise, carried out by School of Health and Social Care, Edinburgh Napier University and led by Dr Cari Malcolm and Debbie McGirr, examined current evidence relating to the provision of education across the United Kingdom (UK) and internationally to inform the development of an evidence based and research-informed education strategy for Children’s Hospices Across Scotland (CHAS).
The scoping exercise confirmed that education, learning and continuing professional development are integral to high-quality palliative care. It demonstrated that there is a commitment to and enthusiasm for further enhancing education in the field. Whilst there are examples of innovative and effective learning and development initiatives across Scotland, there is a need to ensure a more cohesive and standardised approach to education. The evidence from this scoping project has been used to shape a set of recommendations which will inform the development of an education strategy for CHAS and influence the delivery of a national approach to education in children’s palliative care.
Download the Education Scoping Report (PDF, 1.17MB)
Download the Education Scoping Report Summary (PDF, 583KB)
We are proud to announce that an independent report by Children in Scotland has recognised that we are improving delivery of, and access to, palliative care through our work in hospitals and communities. They also recommend that our approach should be extended across Scotland.
This report sets out the findings from an investigation into the numbers of children and young people with life-shortening conditions in Scotland, and what current evidence tells us about their, and their families’, psychosocial support needs.
Download ChiSP Study (PDF, 953KB)
Following the Equality Act 2010 (Specific Duties and Public Authorities) Regulations 2017 UK companies with over 250 employees must publish their gender pay gap data within one year of their 'snapshot date'. For voluntary organisations, including CHAS, this date is 4 April. CHAS took its 'snapshot' data from 5th April 2017.
Our report publishes data on the mean and median salary pay gap, the proportion of males and females in each pay quartile and the pay gap between males and females for staff who receive bonus payments.
CHAS Gender Pay Report 2017 (PDF, 268KB)