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Publications and Reports

You can find our Annual Report, strategy papers and research papers here.

If you have any problems downloading files or can't find what you're looking for, please call 0131 444 1900.

Annual Report and Accounts 2018/2019

Annual Report and Accounts of Children’s Hospice Association Scotland for the year ended 31 March 2019.

Download the Annual Report (PDF, 4.8MB)

CHAS Strategic Plan

With the help of the Scottish Government, we commissioned a ground-breaking piece of research that established, for the first time, the full scale of the number of children in Scotland with life-shortening conditions. It is from this work that we know three children die each week but the more compelling statistic for us was that we are reaching only one of these families. We need to do much more to reach out to every family that needs our help and this theme of reaching every family is at the very core of our new three year strategic plan.

Download the CHAS Strategic Plan (PDF, 2.95MB)

Children in Scotland requiring Palliative Care (ChiSP) 2

New research commissioned by CHAS shows up to-date information about the numbers and characteristics of babies, children and young people aged 0-21 who have life-shortening conditions. Across Scotland, 15,949 babies, children and young people have life-shortening conditions. Of these, 5,671 had contact with a hospital team in the preceding year.

These figures confirm what CHAS already knows - there are many and an increasing number of children in Scotland who are likely to die young. We know the benefits that palliative care brings to babies, children and young people and their wider families. CHAS's vision is to ensure that support is available to all who need it.

Many of these children, and their families and siblings, are living with complex care and support needs. The services available to support them are delivered nationally and locally, through integration authorities, territorial health boards, local authorities and the voluntary sector.

Of all the deaths from life-shortening conditions each year, nearly 40% died before reaching their first birthday. This reinforces the importance of children's palliative care in neonatal units. Staff in those units, and in community nursing teams, must be confident and skilled in supporting new parents and very young babies who will likely live for only a short period of time.

There is a very strong correlation between poverty and being a child with a life-shortening condition. This is particularly the case for babies, children and young people who have had recent contact with a hospital team - 26.5% of these lived in the most deprived population areas; the same figure for the least deprived areas is 15.9%.

Babies, children and young people from South Asian and black families are more likely to have a life-shortening condition than those from white backgrounds. This is an important reminder, if it were needed, that organisations, including CHAS, must ensure that services are accessible and culturally competent for the diverse populations they serve.

You can download the ChiSP 2 report here. (PDF, 7.9MB).

You can download HTML files for part 1(a) (21MB) and part 1(b) (7.6MB).

The HTML are large files and best viewed using the Google Chrome browser.

Enhancing neonatal care and family support in Scotland: a collaborative approach

CHAS has been working with colleagues at NHS Lothian since 2014 to enhance the neonatal palliative care and the support that families receive at the Simpson's Centre for Reproductive Health in Edinburgh. A new report on this collaborative approach demonstrates that families and staff truly value the very specialised support that CHAS can offer.

You can download the report here. (PDF, 2.65MB)

Economic Evaluation of Hospice and Hospice at Home, Diana Children's Nurses and Bereavement Services report

An evaluation carried out by the York Health Economics Consortium (YHEC) has shown that for every £1 of statutory funding, CHAS' experienced staff, generous supporters and dedicated volunteers generate £5.12 of public value in return.

Download the YHEC report here (PDF, 0.5MB)

Scoping exercise to inform the development of an education strategy for Children’s Hospices Across Scotland (CHAS)

CHAS recognises that the scale of need for our services across Scotland is immense. Our ambition is that every family in Scotland who is living with the heart breaking knowledge that their child is dying, will be supported, cared for and helped to make the most of that precious time.

From the 2015 ChiSP Study we know that children’s palliative care continues to grow as a speciality in Scotland with sustained increases in the prevalence and complexity of life-shortening conditions. Education is therefore an integral component of children’s palliative care to ensure the workforce is capable, confident and equipped with the required knowledge and skills to deliver high quality and effective care that makes a real difference to children and families during the toughest of times.

The scoping exercise, carried out by School of Health and Social Care, Edinburgh Napier University and led by Dr Cari Malcolm and Debbie McGirr, examined current evidence relating to the provision of education across the United Kingdom (UK) and internationally to inform the development of an evidence based and research-informed education strategy for Children’s Hospices Across Scotland (CHAS).

The scoping exercise confirmed that education, learning and continuing professional development are integral to high-quality palliative care. It demonstrated that there is a commitment to and enthusiasm for further enhancing education in the field. Whilst there are examples of innovative and effective learning and development initiatives across Scotland, there is a need to ensure a more cohesive and standardised approach to education. The evidence from this scoping project has been used to shape a set of recommendations which will inform the development of an education strategy for CHAS and influence the delivery of a national approach to education in children’s palliative care.

Download the Education Scoping Report (PDF, 1.17MB)

Download the Education Scoping Report Summary (PDF, 583KB)

Volunteering Strategy 2020 - 2023

Our volunteering strategy lays out our plans for volunteering development in CHAS over the next three years and demonstrates our role in delivering the Scottish Government's Volunteering Outcomes Framework. CHAS is committed to inspiring more people to participate in volunteering across Scotland. We're also dedicated to ensuring that volunteers continue to play a central role in our mission of reaching every family in Scotland who needs us. Volunteers bring a wealth of knowledge and skills to CHAS which complements the existing skills of staff, making the organisation more effective. Volunteers outnumber staff three to one. The bottom line is, we simply couldn't do what we do without our volunteer force.

Download the full strategy document (PDF, 1.28MB)

Duty of Candour Report 2019

All health and social care services in Scotland have a duty of candour. This is a legal requirement which means that if things go wrong and mistakes happen, the people affected understand what has happened, receive an apology, and that organisations learn how to improve for the future.

An important part of this duty is that we provide an annual report about the duty of candour in our services. This short report describes how CHAS has operated the duty of candour during the time between 1 April 2018 and 31 March 2019. We hope you find this report useful.

Download the Duty of Candour Report 2019 (PDF, 39KB)

An Evaluation of the Diana Children's Nurse Service Report

We are proud to announce that an independent report by Children in Scotland has recognised that we are improving delivery of, and access to, palliative care through our work in hospitals and communities. They also recommend that our approach should be extended across Scotland.

Download the Evaluation of the Diana Children's Nurse Service Report (PDF, 1.55MB)

Children in Scotland requiring Palliative Care: identifying numbers and needs (The ChiSP Study)

This report sets out the findings from an investigation into the numbers of children and young people with life-shortening conditions in Scotland, and what current evidence tells us about their, and their families’, psychosocial support needs.

Download ChiSP Study (PDF, 953KB)

Healthcare Improvement Scotland unannounced inspection report - Robin House

Both our hospices are regulated by Healthcare Improvement Scotland (HIS), which inspects healthcare services to ensure that they comply with standards and regulations. They check all independent healthcare services regularly, using announced and unannounced inspections. On 16-17 April 2019, HIS inspectors carried out an unannounced inspection of Robin House in Balloch, where they spoke to children and their families and clinical and support staff.

HIS Inspection Report report here (PDF, 1.07MB)

CHAS Gender Pay Report 2019

Following the Equality Act 2010 (Specific Duties and Public Authorities) Regulations 2017 UK companies with over 250 employees must publish their gender pay gap data within one year of their ‘snapshot date’.

The gender pay gap is defined as the difference in the average earnings of men and women, expressed relative to men’s earnings. The data used is over a defined time period, regardless of role or seniority.

This year’s ‘snapshot date’ for CHAS was 5 April 2019.

Our 2019 report publishes data on the mean and median salary pay gap, the proportion of males and females in each pay quartile.

No employee in CHAS currently receives any bonus payments therefore no bonus data is provided.

CHAS Gender Pay Report 2019 (PDF, 541KB)

If you want to talk to someone about your own situation or find out more about our services, please get in touch: