Diana Children's Nurses work alongside NHS staff, and with other care staff, to provide clinical leadership and support in the planning and delivery of palliative care. By working together, families can have a greater choice of care about where and how their child can be cared for, whether it’s in hospital, at home or in a CHAS hospice.
We are trying to dispel the myth and confusion about the word ‘palliative’ because many people view it as end of life, that very acute end of life phase. But in CHAS we are all very clear that palliative care is from point of diagnosis of a condition and that end of life care is just a phase of that, just like bereavement care is another part. And a child can receive palliative care support for many years. We want them to live and enjoy their lives like any other child for as long as they can, because while we can’t change the diagnosis, we can make the journey different.
I am a Child and Family worker for under-five’s, my role takes me across Scotland to provide support to families with young children. I visit them at home or hospital and find out what is important to them. This helps me to understand their needs and how I can help. I feel very lucky to be working within Neonatal and Paediatric Intensive Care Units supporting families whose baby’s lives may be short and helping them to make precious memories for the future.