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Developing Palliative CarePalliativeCare-credit-Paul-Hampton

Dr Pat, CHAS Medical Director, continues in his quest to secure Scotland’s place as a World Leader in Children’s Palliative Care. 2017 kicks off with a one day conference to promote care for the under 5’s. To find out more about this event, click here.

In the blog below, Dr Pat highlights the importance of the ChiSP report which demonstrates the need for high-quality holistic palliative care.

It’s over a year since the University of York published the results of the ChiSP Study, ‘Children in Scotland requiring Palliative Care: identifying numbers and needs’, which was commissioned by us (CHAS) and funded by the Scottish Government. Since MSP Shona Robison (Scottish Cabinet Secretary for Health, Wellbeing and Sport), launched the ChiSP Study, its findings have continued to demonstrate the absolute need not only for high-quality holistic palliative care for under-25s in Scotland – but around the world.

ChiSP highlights some stark figures about the need for children’s palliative care in Scotland, and makes several recommendations to address the issues, but the key points are: 

  • That more children have palliative care needs than expected
  • Children under the age of one are a key priority
  • There is a need for age specific services for 16-25 year olds
  • Services must ensure there is access to care in areas of high deprivation and be culturally sensitive
  • The need for improved psychological, emotional and domestic support

ChiSP is the only national study of its kind in the world, and as such is setting an example for many other health professionals who are considering replicating it in their home countries. Meaning that not only is ChiSP improving children’s palliative care in Scotland – but has the potential to help tens of thousands of families all over the world.

Since its publication last year, the ChiSP Study has attracted global interest, not only taking me to Rome, but also Montréal where there was also huge interest in the Study. In 2015, I also had the opportunity to discuss it with delegates from around the world at the 2nd International Children’s Palliative Care Network in Buenos Aires, Argentina.

ChiSP has been gaining notoriety around the world, and one of its biggest compliments so far is its recognition from the Scottish Government’s Strategic Framework for Action, to improve palliative care for all in the 0-25 year age range by 2020 via its funding announcement at the end of 2016. The Scottish Government’s commitment of £30 million should make everyone at CHAS feel incredibly proud of their contribution to the charity, as it demonstrates their confidence in our abilities to be able to deliver quality palliative care to children and reach families across Scotland that really need CHAS’ services.

The ChiSP Study has been a far more powerful tool than we ever expected, click here to see the full report findings and recommendation.